Zoe was born in 2015 and grew up as a normally developing child until around 18 months, when it was questioned why she wasn’t yet walking. At first it was considered to be caused by hypermobile joints, but shortly after Zoe turned 2 it was apparent that she was developmentally behind and had lost some skills.
In January 2018 Zoe had an MRI brain scan which revealed significant brain damage, cerebellar atrophy. Zoe has now been diagnosed with Infantile Neuro Axonal Dystrophy (INAD), a rare genetic, degenerative, neurological condition. Zoe is currently participating in a drug trial which has the potential to stop the decline and return some lost skills.
Zoe is still a bright bubbly fun loving beautiful girl. She has a great sense of humour, an infectious laugh, and still tries to wave and blow kisses. She loves bouncing along to songs and interaction with others, cuddling the neighbours dog and her toy rabbits. She has a good understanding of what is going on around her, and loves it when you copy her actions and sounds, especially drumming. She has a smile that lights up the room.
Zoe has been coming to SNAPS since October 2017. Zoe loves going to SNAPS to meet all her friends and to participate in rebound therapy. Rebound helps Zoe with balance and to strengthen her muscles. SNAPS Yorkshire have been providing invaluable support for us as a family.